Surviving summer is always tough. There's the heat, the humidity, and most of all, the expectation that you spend all of your time outside pretending that you actually enjoy it. Add chronic illness into the mix, and it's tempting to find a commercial walk-in freezer and never leave it. These are my favourite products which have helped me this summer.
A bit of a ramble about my rheumatology appointment, how to be a good doctor, and how to be a good patient.
This morning, I woke up at 5am. Normally, like any young adult, my reaction would be to groan at waking up at such an ungodly hour, but today I was ecstatic, I slept for five consecutive hours last night! After the week I've had, where I've been lucky to get an hour total, it felt absolutely amazing to get some proper sleep.
My pain reached the point where I was actually in tears, struggling in vain to convince myself that I was fine, hoping that if I just told myself to be strong it would go away on its own. Luckily, I have some amazing people in my life who know the difference between when I'm being brave, and when I'm just putting on a brave face.
If my journey was a book, I guess I'd call this blog Chapter One after a long, convoluted, and confusing Introduction.
Yes, I do realise that sounds trite as anything, but my health journey has been confusing and all over the place, and I'm still trying to make sense of it myself.